The piece as a look of this Sunday mass committee of health and human services to lead to fly to making 975 pages that are serving with this today we have five lead by the recognize standout when I call your name given that Thaler from union county sponsored by representative art and Yvette mine for New Hanover County sponsored by representative knows some welcome to the hacienda, a health and human services committee ballot by daddy with this today by the ad serving as a basis we can I make this a great experience for you hire a surge of the lines serving today are free and hinds Martin lee Reggie Seles call for relaying in Barrymore a member some as last week we have another committee this morning meeting 11:00 so until you now we're planing two of the Janus meeting approximately 10 minutes till 11:11 AM at from the first order business will be the steal a team has put a way so that this committee last week members you add additional weeks to study this issue to the lobby on this issue the end of it is that says it can take a back on this bill no later than 10:30 ms in time to cover the second bill with any given the left off last week and we have some some public speakers only if I have no way that have come at 705 minutes per side via speakers in being given to the charity events and got it this time, mechanized those are the speaking against them or began faster Paul bands whose recognizes spend half a page not the same one that has put my instructions and following that such an eight-day minicamp next and nine -10 as soon take the man from thereof, (SPEAKER CHANGES) Mr. Benn seven gets a : I can assure from a nation that is often a national tour on a prominent same goes for about 13 years , this bill's not doing anything to help small businesses to enough to Martin Thomas of 25% of my business that did this takes away from this is a thing that hurts are completely control of the time and they sign for these were the seven seals day of the senate controlled environments are not allowed to go sunburned anyway and from a North Carolina are about 2600 tanks lawns, there are about if the syntax about 25% of our business has about 5200 employees are potentially of work , how we go awry around stock is from some something we can let of 15 and 16 hill drive cars a 70 miles an hour as final see where this bill's going , thank you (SPEAKER CHANGES) for taking this man's the mayor that and the speaker Minister Dominique you again identify yourself up for the committee and the Mr. levy of closures thank you very much in this chair are taking a sixth day of Miami’s (SPEAKER CHANGES) Joe Lyons executive director of the national smart and networking educational institute at Gulfstream Materials for North America take the Saudis in the certified training course in North Carolina only to go all the director of the melanoma clinic and duke university stood before this committee and told you that natural sunlight is predominantly UV B but some better UV eight which is essentially saying that the site storage it's completely inaccurate and that there is no debate in the scientific community about the role of UV and skin cancer , I’m presented material to showing that there S only is the data about their role in defining the role that you be plays in the development of melanoma skin cancer than on a list or coming in or workers and other workers acquiring the world health organization is more complex about a dull receive regular exposure of their case today I presented material few innocence senators to the point of leaving that were supposed to be distributed to selling in fact, the privatization report was referred to as if it represents many salons actually talks about sun beds and other three Texas Sundance Committee policy uses some beds which they refer to is safe in their literature and monuments and tanning salon usage and that if you differentiate the tanning salons of the dataset the signet that increase was not significant but that the usage double the risk and comical usage also increase the risk of a cemetery at 2:00 PM at…..
[Speaker changes.]...healthcare, Journalists' Association...Association of Healthcare Journalists, showing that that 75% stat is a relative number but it doesn't show you that the absolute risk...those studies show that the melanoma risk amongst people who have ever used a sunbed is three in one thousand...that amongst people who have never used a sunbed was two in one thousand and that included the European model of home unit usage and medical usage. The difference was only one in one thousand. And, as Dr. Ivan ???????? points out, that is an issue. I sent you material from Dr. Arthur E. Rhodes???????, a melanoma researcher from ????????? University Medical Center in Chicago who wrote about melanoma's public message...some public education messages that we've endorsed may actually be doing more harm than good. The three messages most in need of re-thinking are: sun exposure is the major cause of melanoma, you can recognize a worrisome mole with the ABCD and that the incidence of melanoma is rising rapidly and that we have an epidemic crisis on our hands. What Rhodes points out is that he has colleagues who are doctors, whose wives were doctors, who never went outdoors in the sun...had lesions on their backs, who died of melanoma thinking that melanoma was only sun-related and, since they didn't tan, that they couldn't possibly be at risk. He's saying that we need to educate people on sunburn prevention, that the major risk factors recognized for melanoma are number of moles on your body, red hair, heredity are the biggest risk factors, independent of sun exposure and that sunburn prevention ought to be taught. I sent you material showing that the National Cancer Institute shows that in 1975, the incidence of melanoma in older men and in women under the age of 50 was virtually identical but it has increased five fold, according to the National Cancer Institute's data since 1975 but it has not increased in that commensurate fashion amongst women and that the mortality rates in females have actually declined since the advent of tanning....I'm not saying tanning caused the decline in melanoma rates but it has not increased. It is not a slam-dunk figure and that the melanoma rates from the National Cancer Institute for young women are about .5 per 100,000 and haven't changed in the last decade. I also sent you material that the most recent study, done in England, peer reviewed data...a relationship between sunbed use and melanoma risk in a large case control study in the United Kingdom, says quote..."In our case control study, we found sun exposure measure most associated with risk was a protective effect of regular weekend exposure." [Speaker changes.] Mr. Levy??????? [Speaker changes.] Yes. [Speaker changes.] I'll give you an additional thirty seconds to wrap up. [Speaker changes.] Thank you very much. In...to wrap it up...we're here to engage in a higher level of discussion in four minutes or less. My industry admits that there is risk to overexposure and teaches a balanced message of maximizing the benefits and minimizing the risks. It's a slippery slope and when you start legislating behavior and morality, believing that there is no debate in the science when clearly there is. I am happy to answer any of your questions. Thank you. [Speaker changes.] Thank you, Mr. Levy. Next, we'll have...we will have questions later but I'm gonna proceed at this time with our speakers. We'll have five minutes now on the "for side". The speaker for this will be Dr. Kelly Nelson. Dr. Nelson, the floor is yours. [Speaker changes.] Thank you. I appreciate the invitation to you again. I'll speak for four minutes and then the remainder of our party will speak for one minute. As you recall, my name is Kelly Nelson. I'm a dermatologist at Duke University where I direct a program that provides care for patients who have personally had melanoma or who are at high risk of getting melanoma. Now you're aware the wide variety of health organizations, both here in North Carolina and nationally...indeed internationally ...support a prohibition on the use of tanning beds by minors. The American Academy of Dermatology and the American Cancer Society wade into public policy debates like this only after an exhaustive review of the literature and after there is consensus about the meaning of that data. You've received communication from the Child Fatality Task Force about it's exhaustive review of the science connecting indoor tanning to skin cancer. You've also received a detailed response letter from my physician colleagues and myself responding to the unrepresentative scientific information that the tanning industry has used to try to confuse the issues about this bill. I won't review that letter in great detail during my limited time but I want to highlight three key points. First, we reached out to Dr. Rhodes??????, the dermatologist at Chicago???????? University, whose past statements Mr. Levy just reviewed with you. He was very upset to learn of how his views were being misrepresented and said that he, like many other dermatologists, supports legislation to prohibit teens from using tanning beds. Second, it's important to understand the data is overwhelming that even minimal use of tanning beds, particularly by children, significantly increases the odds of getting skin canc.....
Injuring nine in which can be fatal to force everyone he's the candidate will not develop skin cancer as everyone essential not develop one cancer a 19 average in case of lung cancer is a direct result of smoking not a case in IMS a direct result of sun exposure or team they used the children EC bartending bats are increasing their risk of skin cancer inserted a Texas law entails there any your concern about the impacts legislation would have on small businesses are two main Is a increasing number 10 salons offer spring mountain products as well as many bad exposure when I cancel my patients I recommend this is a potential alternatives should they desire to have a physically candid parents and their skin is very satisfactory and understanding is that often Sunday Services are slightly more lucrative than to bake in terms of the small business, approached precise racial simply said the current dollars in 1980 shirt and baggy illustration to spray on in the past years, just North Carolina State countless hours mean that legislators building coalitions of other greats talking to the press building a website to educate the public office all designed to help support the predawn legislation before you to nine us why we doing this is selling at a benefit our bottom line is bound to be honest about it this legislation will hopefully mean a reduction in business for me which is exactly why myself in all of our colleagues focusing on knowledge and why we would love to have no more business nine in terms of cutting a skin cancer for people who are entirely to have in most of our patients will be fined and sister and IS to skin cancer at some of them are on some of them get on a nine we spaces can have deadly consequences by now there is a wholly can do for the spacious advance knowledge, that is something that we can see you later each has immediate is to spend their time to help prevent this from happening to our young people we ask you to create hostile 18 esoteric allergists and pediatricians in family practice doctors and oncologist often Oliver the see as you to support this legislation see clients it's really a simple ad , but now some non-military chiefs said everything you see some on the phone bill for ages, (SPEAKER CHANGES) thank you Jill and nine that's when I had last week a chair would just like to make that this is a continuation of the discussion that occurred last week and the committee seventh and if it seems like they were not taking a great deal of nine from Coniston bank college is pulling out for you that this is a less summary if you will love of public works and what they stand alone can recognize represent the following two as speak to the bill Tisdale Bemis chairman, (SPEAKER CHANGES) thank you all have a copy of the CDC responses to questions I had come before you also a letter from a more fundamental to association hostile eating your skin cancer prevention act as a public health bill is a public safety bill as other welling scientific evidence that UV radiation contain this contributes to the development skin cancer this legislation is supported by American cancer society and or cancer coordination control in the front row fatality task force the north Letterman college association and northland medical society and North Carolina College association and or five pediatric society and melanoma American Society for them to logic surgery association that U.N. legal aid, melanoma foundation and the sign says the CDC's chair for disease control and the soared eight organizations have nothing to gain financially by scoring this bill their only game is protecting our youth soccer cheers for the bill (SPEAKER CHANGES) Paden said that nemesis is your time for questions and comments of the members have questions or comments at this time represented Avalon and (SPEAKER CHANGES) thank you Mr. chairman, have a question for heard from the last 2% A miscellany estimated return to the commission bank in the senate this only last week and 10 year, somewhat longer presentation the referenced unintended consequences contents panel metal that (SPEAKER CHANGES) thank you very much a question that this bill would do would not allow the five teenagers to use home units and if you check rides listening the right now because there are a number of changes slowly set up close and the last several years .............
the economy and due to the 10% tax that was put on tanning beds as part as that healthcare bill there's plenty of beds on the market. This will create an underground industry and, as I've demonstrated to you, the major risk factor is un-monitored usage of sunbeds and medical usage of sunbeds as the biggest contributing risk factors for melanoma. You're going to drive this underground and create that unintended consequence. We've done surveys, we did a survey through international communications research that showed that 75% of teens would elect to tan more aggressively outdoors or would use home units if this type of legislation were passed. So you're creating another problem. [SPEAKER CHANGES] Thank you, and a follow-up with Dr. Nelson. please. [SPEAKER CHANGES] Follow-up, Dr. Nelson please. [SPEAKER CHANGES] I'll just say that there's nothing to currently prohibit that from happening now. [SPEAKER CHANGES] Excuse me, Dr. Nelson, I haven't asked my question. [SPEAKER CHANGES] Oh, I apologize. [SPEAKER CHANGES] It's different. [SPEAKER CHANGES] Representative Avila is recognized for the question. [SPEAKER CHANGES] Certainly. [SPEAKER CHANGES] Do you use photo therapy in any of your dermatological practice treatments? [SPEAKER CHANGES] My sole practice is to take care of patients with melanoma and skin cancer, so not in my personal practice. [SPEAKER CHANGES] Follow-up, please. [SPEAKER CHANGES] Follow-up. [SPEAKER CHANGES] Do you know dermatologists who do and could you, as a dermatologist I'm sure you understand what that means when they do that, could you explain a little bit about it and why they use it? [SPEAKER CHANGES] It's used for the treatment of severe inflammatory skin conditions, such as generalized psoriasis. However, I will say that is certainly first-line therapy for treatment of young patients, under the age of 18, even with severe skin conditions. [SPEAKER CHANGES] Thank you. [SPEAKER CHANGES] Mr. Chairman, if I could close with a comment. [SPEAKER CHANGES] Representative Avila is recognized. [SPEAKER CHANGES] We've come today with dueling research studies. One I have come across recently is a Norwegian researcher by the name of Johan Moan. He's a cancer researcher and back in 2008 he was surprised to find that cancer patients diagnosed in summer live longer than those diagnosed in winter. And this vital clue convinced him that vitamin D from summer sun was one of the best treatments a cancer patient can get and it led him to question the conventional wisdom on dangers of sunlight. In 2011 his group released a meta-analysis of a myriad of studies on skin cancer and suntanning and come to find out, and I quote directly from it, "Sun exposure is commonly supposed to be the main cause cutaneous malignant melanoma in most populations. However, the matter is disputed." Like a lot of other issues that are based on science, and someone quoted me the other day that, as a scientist, I find it hard to come down on one side or the other when there is still a question about the validity of the absolute. Thousands of children are injured and killed every year in automobile accidents, are we going to ban them from riding in automobiles? Hundreds die every year from swimming pool accidents, are we going to ban their participation in pool activities? The same thing is true with sun tanning. We can ban, by law, their use of a suntan bed but you and I both know that we're not going to ban, by practice, their use of suntan beds. And it needs to be in a controlled environment with supervision, which I feel belongs in the parents' hands. And it works. Last week, interestingly enough, there was an article in the News & Observer and in the interviewers talked with a mother and her daughter, who were in a suntanning bed, for her to get her mothers permission to suntan. So the law, as we currently have it, works. For years dermatologists who use photo therapy for medical treatment practice, back in the early 90's it was something like 800,000 sessions a year. Their Hippocratic Oath is do no harm, so I'm assuming that they understood what they were doing and used it in a manner and in a way that would not present harm and I think we can do that for our citizens of the state with a law that we currently have, prohibiting, under the age of 14, and with permission of parents under the age of 18 to 14. And what I'll do is leave you
Deployed to life than just an lax to go back in history for his saw analogies and education are going to let with a German Swiss premise Physician and botanist alchemist in astrology are and live from 1493 to 1541 is quite bullish, Pleasanton is and everything and nothing is without poison and the dosage makes it either eight poison and for a remedy -epicenter that the end of this edition of the (SPEAKER CHANGES) members also that the Spokane area since sentenced to two of a California five, that if that better than you recognized I just I just said, (SPEAKER CHANGES) to develop made it difficult to take a difficult as a good bet you will find out as where states that have figured millions they are about them only as in addition to two states looking at the station this year is is that correct that questionnaire that Pakistan before that, as then, one of the two staff need any extra fat a conference of state legislatures had ms and work fine if it looks like there were 10 C still led regulations MI and not clear on a number that are looking at legislation right now (SPEAKER CHANGES) we can certainly get out for the committee taking of any other comments to the end of the tough for them and question the comment of the representative be a tanning bed industry or just curious understood that there's a certain percentage of the industry and are generally are in North Carolina them that john tune of 10 individuals so under 18 (SPEAKER CHANGES) has said is that accurate statement are not accurate statement you have any statistics on the percentage of attaining the industry that the longer alone does not deny the region if they could pose as taken a dramatic and Joseph lady of American something association under Collier and five small minority of facilities that, like to do that on their own, it would be a very small minority of the content from well-dollar that thank you for sharing and that just that, (SPEAKER CHANGES) and has nothing to the question most of this report good part of what is going on here and you can see the legislation that there's a home there some in the help they are and nine of the group and now they're back to the extent that people rely on warm government to pay for Health Care and government pays problem for more Health Care of any other group of players if you look in Federal and state government that from government is going to be more engaged in and nine of a use practices that are out there because essentially what it's doing is is protecting its long-term cost interest in the stranded health could cast here comes down the road and soon to me this bill from the fashion analyst roger senate ram nine North Carolina but nationally go from the preventive types of legislation from the roof all in the motor saying we need to government has an interest in from many bodies and wellness initiatives or prevention initiatives because that the medley from most of these are good share of the melanoma stood for example or other chronic Health Care conditions that could arise home in that vein page four of the government's own show a former flesh -and add to that effect of the most recent move analysis would walk over 2012 (SPEAKER CHANGES) British Medical journal had twice as many locations opposes new studies involving making the collision only moment was increasing moral of the Altamont aluminum skin cancers groups claim sold by social this bill that does nothing except range was socially…….
[0:00:00.0] …It was passed in 2004 when the State General Assembly recognized that most tanning lines provide without significant amount of UVA, UVB radiations both types which are found in the outdoors and ___[00:12] various types of damages to the skin and merely the skin cancer and whereas the tests studies suggested that the tanning device contribute to the incidence of melanoma, recent studies at General National Cancer Institute indicates the use of tanning devices may contribute to incidence of melanoma and skin cancer. You got a situation where we just acting on evidence that is occurred in the later time ___[00:34] and to the physicians treating these patients since 2004. There is a radiation safety division in the state and inspects tanning beds because they admit the type of, in this sense not nuclear radiation but the type of exposure to a dangerous and recognize dangerous UVA and UVB spectrum that causes disease of the skin and now we know more but do not act upon recent evidence would be put in the head and saying literally. I would reference the last Senates in the article that Senator ___[01:15] quoted in these observations, they indicated that the student when ask, he or she then ask about and she have been told the skin cancer was a risk of doing this you said they had not informed her. So, we need to understand this is for the positive in fact to the public health and I’m in favor of this bill, thank you. [SPEAKER CHANGES] Thank you Representative Fulghum, Representative Jackson is recognized. [SPEAKER CHANGES] I have a question for the bill sponsor Mr. Chairman. [SPEAKER CHANGES] You may proceed. [SPEAKER CHANGES] I’m in favor of the bill just like quick question about the change that was made from the original bill about the under 18 with the prescription. It seems like our existing law was written but the impression that sometimes a child under 13 would need access to tanning services by medical prescription and I’m just wondering why we are taking out any inability for someone get tanning if they had a medical prescription. [SPEAKER CHANGES] Thank you for the question. I believe the reason it was because treatment for Cirrhosis, ___[02:23] something like that is best done under controlled situation in dermatologist office. [SPEAKER CHANGES] Follow up Mr. Chairman. [SPEAKER CHANGES] Follow up. [SPEAKER CHANGES] They would still be able to do it in their office when there is no problem with it. [SPEAKER CHANGES] That’s great. [SPEAKER CHANGES] Thank you. [SPEAKER CHANGES] Seeing no further comments at this time, Representative Burg is recognized for a motion. [SPEAKER CHANGES] Representative Insko. [SPEAKER CHANGES] I just make a very brief comment that I have had time to review this over the week and the preponderance of evidence is clearly that this is a good bill in the public health interest so I support the bill. [SPEAKER CHANGES] Thank you, Representative Burg. [SPEAKER CHANGES] Thank you Mr. Chairman I would like to move that we give house, are the proposed committee substitute to House Bill 18 a favorable report, I believe… [SPEAKER CHANGES] Refer to regulatory reform. [SPEAKER CHANGES] Refer to regulatory reform committee. [SPEAKER CHANGES] Representative Burg moves for a favorable report for House Bill 18 with referral to regulatory reform. [SPEAKER CHANGES] All in favor say aye. [SPEAKER CHANGES] Aye. [SPEAKER CHANGES] All oppose no, depending on the Chair the ayes have it, the ayes do have it and the bill has given a favorable report. [SPEAKER CHANGES] Thank you Mr. Chairman and members of the committee. [SPEAKER CHANGES] Members the next bill is House Bill 105 and Representative Fulghum you are recognized to present your bill. [SPEAKER CHANGES] Thank you Mr. Chairman. This bill is an easy bill to talk about simply because it does a very good thing to continue move on screening for conditions that are common. I say common because the condition of congenital heart defects is something that we have recognized more in the last several years to extent that we can find them in ___[04:32] in many cases and we have a story today that’s very telling. One of the things that Candy done for a new born is to try to find if there is any problem with that child’s ability to conduct circulation, the heart pumping blood to the lungs and getting oxygen in the blood in a timely manner and that means while the child is still in the hospital just well in birth. This bill… [0:04:59.9] [End of file…]
Requires pulseox symmetry which is a measure of the amount of blood that's carrying oxygen and a percentage of that pretty quickly, like the first 24-36 hours. You don't want to do it too quickly because the child is doing a transition from being a ?? animal to a land animal so the circulation's changing in such a way, but this is easy, it's inexpensive, many hospitals in the state are doing it at the present time, we would like to push this over the hill. This bill does not carry any significant state fiscal issues. There's not a fiscal note on this and there's been widespread support from virtually every part of the medical community that this is the right thing to do at the right time. I would like to show you a short film clip that just demonstrates the type of procedure that we're really talking about. [SPEAKER CHANGES] Thank you. [SPEAKER CHANGES] Pulseox Symmetry is a simple, painless, inexpensive means to help us detect critical congenital heart disease. [SPEAKER CHANGES] Screening for congenital heart disease using pulseox symmetry can improve outcomes and save lives. The goal would be for every hospital and birthing center in the country to screen babies and that is what the pulsar test will be for. [SPEAKER CHANGES] Pulseox symmetry, called pulseox for short is a simple, painless and non-invasive test that helps identify babies with heart defects known as congenital heart disease or CHD, the number one birth defect in children. Pulseox is just one of several tools medical professionals use to help identify newborns with serious heart problems before they ever leave the nursery. Many leading health organizations have endorsed adding screening for critical congenital heart disease to the uniform screening panel. [SPEAKER CHANGES] This is going to be a game changer for us and now we're just going to have a little bit more safety for those babies when they're born so that we find them and get them to early treatment and that will improve the lives of many babies. [SPEAKER CHANGES] I tell families that it's an easy, it's a painless and it's a very quick way to check for the presence of CCHD in their newborn. [SPEAKER CHANGES] My daughter, Veronica, died suddenly and unexpectedly when she was 7 weeks old of an undiagnosed congenital heart defect that could have been picked up had she received screening when she was born. She appeared perfectly healthy. I had all of the prenatal tests including the 20 week ultrasound. Everything was normal so we were under the impression that she was a perfectly normal baby with a perfect heart. She died suddenly. They found that she had this heart defect that could've been fixed surgically had we known about it so when I learned about pulseox symmetry screening, that this could have been done, it really made me angry that she had not been screened. I hope that one day all babies are tested before they leave the hospital so that no baby dies from a treatable condition the way my daughter did. [SPEAKER CHANGES] CCHD screening should be done at or as close to 24 hours of age as possible. We screen the right hand and the right foot. It performs a pulsox measurement on both those. [SPEAKER CHANGES] The pulseox screening measures your baby's blood oxygen levels. If the levels are normal, that's all there is to it. If the levels are below the normal range, the test will be conducted more times to ensure accuracy and an average reading. If the pulseox intervals recorded are lower than normal, your baby will be rescreened because sometimes babies take time to adjust to breathing outside the womb. [SPEAKER CHANGES] If the screen does not give the results that we are looking for we do multiple screens. If at the end of those multiple screens those levels are still not what we want, we are in touch with the baby's pediatrician and they determine what the next course of action is. [SPEAKER CHANGES] The goal is to be sure to catch any concerns for your baby's health before he or she leaves the hospital. Of course, no screening can catch all heart defects or other issues.
If you notice that your baby has any of the following signs or symptoms of CHD, be sure to consult your paediatrician immediately. [music] [SPEAKER CHANGES] We think that it's so important to catch babies quick that have any treatable condition early. So in addition to the heel stick, in addition to the hearing screen, we think that CCHD screening fits in so nicely because we can save babies lives. And that's huge. [SPEAKER CHANGES] Approximately eight of every 1,000 infants born have a form of CHD. While this screening can't detect all forms of CHD, it helps with early identification of some at-risk babies. [SPEAKER CHANGES] Our goal, ultimately, is that no baby with critical congenital heart disease will leave the nursery and not be treated for a condition in which we have excellent results. [SPEAKER CHANGES] We want all newborns that are leaving the hospital to have access to this CCHD test. And we have tried to show that that's possible. [SPEAKER CHANGES] We really want parents and providers to know that CCHD screening using [pulsac symmetry] can improve outcomes and potentially save lives. [SPEAKER CHANGES] This is just another test in the panel that is for the benefit of your baby, to give your baby a chance at living a long, healthy life. [SPEAKER CHANGES] This CCHD, repeat: critical congenital heat defects. We probably have about, as the bill says in the ??, 4800 of these babies born nation-wide every year. But there're really five times that born with heart defects, but these are critical. These are the ones they call blue babies. These are the ones that can't live very long: weeks. So this finding at this time is the best we can do. And I have to give my kudos to the public health people in the state. When I started in 1967, between schools I worked at state lab doing the PTU test. And this was the first metabolic test the state sought to do for newborns - and the blood blot test that people turn in. It's a marvellous opportunity. $19 now buys you over 35 metabolic screens, and they do hearing tests. So this is just one of the things we know is the right thing to do. And I ask the chairman to recognize Greg Olson. [SPEAKER CHANGES] Mr. Olson if you would come forward at this time as part of Representative [Fulghum's] presentation. He's invited Greg Olson to come and speak. May of you may know Mr. Olson as ?? and Carolina Panthers. Mr. Olson we're pleased to have you with us today, go Panthers, and the floor is yours. [SPEAKER CHANGES] Thank you very much, Mister Chairman. Thank you all for allowing me to come today and speak on such an important issue that in the past year has changed my families lives and our songs life forever. In October of 2012 we welcomed twins: a baby girl and a son. And our son was diagnosed in-utero with a condition called hypoplastic left heart syndrome, which in it's simplest forms means he's born with half of a heart. His left side of his heart never develops in-utero and early developments, and when he is born he just has a functioning right side of his heart. So when they're welcomed into the world - we were in the big room and they're delivered - and we have neo-natologists, we have intensivists. We have the whole team ready to whisk him away into the cardiac intensive care unit. Because we were one of the few fortunate people who was able to be diagnosed in-utero prior to the birth of our child. That's not the case - as the video demonstrated - that is not the norm. The majority of these babies are born, and just like he said, they are marine animals. Their ductos artereosis, which is what a baby bypasses their lungs when they're deflated inside the mother's womb-- they don't breathe like me and you do. So when they're born they appear completely normal. They're breathing 100%. And then over a 24 hour span those ducts close and now these babies need to start breathing oxygen. And our son, if undiagnosed, if undetected, within a week would have died. It's 100% fatal. There's no way the body can, obviously, go on without oxygen. SO I can't imagine what that would be like as a family to bring a child home and - thinking everything is fine. We've welcomed two other babies home and I can't imagine that day two or three at home all the sudden now you look down and your baby.
sweating, blue, and possibly dead. Fortunately for us that was not our condition. He's had, on day two of life he had his first of three scheduled open heart surgeries so on day two he was completely opened up for intense open heart surgery at Levine Children's Hospital and fortunately he's doing well. He's getting ready for his next surgery but I think the moral of the story is there doesn't have to be anyone who has an experience unlike ours. They don't have to go home un-diagnosed. They don't have to go home undetected. And I think House Bill 105, to a father and to a family who has been through this and the countless families in the audience, it almost seems too easy. It almost seems like it makes too much sense to give these families, for a cost of a diaper change, to throw it into a discharged screening to say, "Okay, you're child," this test is so simple that I do it every day to our child. It's part of his daily routine, no different than weighing in scale, writing it down. We do a pulse ox, we have one at our house, it's about this big. It's a little bigger than a cell phone. We hook it up with a little sticky pad, we hit the button, we wait a minute and it spits out the numbers and we record it. We know where his numbers are supposed to be, if they fall or raise we call the doctors. It's as simple as that. And one of those screens could prevent all of these kids from going home undetected. I would just encourage all of you to support this bill just for the countless numbers of families to have the tragedy that you saw on this video and it might not necessarily pass but being rushed into that hospital and going through everything we had to do knowing nine months in advance. I can only imagine what those families have to be like, you bring home your baby in that moment of joy, two days later is panic as you rush him into the emergency room to undergo open heart surgery to save his life. I encourage all of you to really consider and please pass this for the countless families, House Bill 105, and we really appreciate your time and thank you for allowing me to come here and share my story with all of you and hopefully you guys can see just how important this really is. Thank you. [SPEAKER CHANGES] Okay, thank you, Mr. Olsen. The Chair has recognized, we've had at least two members that have asked to speak at this time so we'll go to members comments and questions beginning with Representative Murry. [SPEAKER CHANGES] I just had a conversation with a constituent of mine representing the American Heart Association and she told me rhyme: 98 to 105 is a good way to keep babies alive. And so with that, with that in mind, and I don't want to be on the wrong side of Mr. Olsen here as well, I've seen him on the field and I think we're better off being on the right side so with that in mind I'd like to make a motion that we give this bill a favorable report. [SPEAKER CHANGES] Representative Murry, if you'd hold that motion, I've got one more to speak so we'll come right back. [SPEAKER CHANGES] Representative Dollar, you're recognized. [SPEAKER CHANGES] Well I was going to make the same motion but, as Representative Murry said, Mr. Olsen is brave going across the middle but there are other forms of bravery in families having to deal with very serious issues so I compliment the bill sponsors for bringing this measure for us and certainly, I think, everybody's going to join in in supporting this legislation. [SPEAKER CHANGES] Thank you. Representative Samuelson. [SPEAKER CHANGES] Thank you, I have a question for the bill sponsor which may show how long it's been since I delivered a baby. Do all babies actually now stay in the hospital that 24 hours and how would this apply, because I know at one point people were leaving earlier and then, of course, the whole issue of the home birth. So I assume there's a way for this to apply but I just thought I'd ask the question. [SPEAKER CHANGES] I think the summary is that almost all should stay 24 hours. The, that's a good point, the birthing centers, the home deliveries, and hospital deliveries are all affected by this bill. So we have to make, they have to make arrangements for that and they also have to do the blood blot test as well, only this is required. I had one correction I'd like to make. I had a physical memorandum and not a physical note, I'm just learning, thank you. [SPEAKER CHANGES] Representative Cotham. [SPEAKER CHANGES] Thank you, Mr. Chairman, and members. And having given birth two years ago I can tell you that this test was done on my baby and it was just one more test for peace of mind, which is what any new parents absolutely want and this is important and we should offer this for all children in our state. [SPEAKER CHANGES] Okay members, seeing no other hands at this time, Representative Murry, you are recognized for your motion. [SPEAKER CHANGES] I will bring one other thing up, in section B2, it's something for the proponents of the bill to consider, when we're talking about telemedicine potentially, this has been raised as a concern, potentially that this section B2
part one, section b2 might create some sort of monopoly in that situation so that we might need to tweak that language just a little bit. I'm one of the primary sponsors of this was an issue that got brought up to me just recently so there might be a modest change needed when we take this to the floor or maybe in the Senate just wanted to raise that issue for everyone's concern. I don't think it's a herculean task to address that, but I wanted to bring that to the attention of the committee that just came to my attention. But with that in mind, I'd like to make a motion for a favorable report to House bill 105. [SPEAKER CHANGES] Rep. Murry moves for a favorable report for House bill 105, all members in favor signify by saying "aye". [SPEAKER CHANGES] Aye. [SPEAKER CHANGES] All opposed, "no". The "aye"s have it. This meeting is adjourned.